Her most recent CF appointment was when we found out that her liver enzymes have been elevated the last two times she has had labs done.  It was then that our CF doc told us they were going to start closely watching them and if it continues it would be indicator that she might have CF related liver disease…

 

I wanted to crumble when I received this news.  I try so hard to stay shieled from the grim side of CF in our overwhelming viral world. I hate to hear about 12 or 15 year old losing the batttle in CF and passing on or hearing about the countless CFers living in hospitals awaiting  a lung transplant.

 

Me being the person I am though, immediately researched CF related liver disease and found that it could explain some of  her symptoms I have been seeing in the last few months.  The info I wish I wouldn’t have read was that it is the 3rd leading cause of death in the CF community…

 

So now those 2 words are in my mind daily and I can feel the fear and the many “whys” combined with the “what ifs” being my challenger in the game “follow the leader” because I can’t seem to escape them

 

Now I am having to chew on the very words I have shared with countless friends in their struggles, our church body on sunday mornings and most of all my maker.  I know I serve a big God, I know Ezzy’s story is only in her 1st few chapters, and I know that God has so much to teach me about TRUST.  But most of all I know that HE is GOD and HE loves my beautiful little girl whos days can numbered by our Docs, but in reality are truly only numbered by the one who nit her together in my womb and I am going to praise HIM because I know she is “fearfully and wonderfully made”

 

will you join me in prayer for her, especially since she is battling a narly cough right now?