“Momma, why does no one ever ask ‘where’s Kyre?’”

… (quick glance over to Richard) insert dagger straight to my heart.

“Kyre Grace, it’s because we don’t have to worry about you. You always stay close, you always know when it’s time to go. Ok baby?”

… “yeah” (turns her head to look out the window as the attended event starts to fade in the distance)

Kyrene Grace Harney is the typical middle child. She feels like she has to fight to be seen or heard. Her siblings demand and get way more attention from her parents then she does. I recently read an article on middle child syndrome:

“people tend to not notice they’re there. They end up feeling left out and forgotten. Parents tend to not notice their needs but focus on their dire emergencies only. Middle children seek love and happiness through friends and become social butterflies”

Just reading those words that describe my middle child, I felt sorrow, yet saw a strength that is being formed through the critical years of living in the shadows.
One day, I do plan to tell Kyre that she was the biggest best surprise that God had wrapped up in a bright shiny box for me. I know I won’t be afraid to tell her that I was fearful of having another sick baby and didn’t want another child to walk the hard, constantly evolving road of Cystic Fibrosis. I will see her pin point dimples in the corner of her smile as I tell her that God worked extra hard to knit her inside me as I grieved my dream of a big family, unaware of his big plan that would come when I least expected it.

Even though we found out her life would not come with the diagnosis that rattled and left her parents having to peel themselves off the floor of depression and grief each morning, nothing would prepare me for the role she would find in our family.

Mary Jaworski, who wrote Shadow Children, says:
“Parents overwhelmed by the draining daily demands of caring for a sick spouse or child unwillingly or inadvertently overlook the needs of the well children. The healthy children may end up feeling helpless, isolated and unable to cope with the anger, resentment, jealousy and fear and other powerful emotions that bubble up when a sibling, a parent or a beloved grandparent faces a life threatening disease. These are the shadow children and their numbers are growing as advancements in treatments help those with chronic and catastrophic illness live for years”

If I am honest, I fight for memories of Kyre in the tender years of infancy. The little things that I have carved space for with her siblings, seem to overwhelm the few I have of her. All I can think is that she came during such a scary time, Ezzy’s second hospitalization. Ezzy’s first lung infection. Ezzy’s second bowel obstruction. Yet I know that her little life is what kept me sane. I had little baby that only wanted me, only wanted my milk and only wanted to be held close at all times. She became the soul that would provide hours of playtime when Cayden would go to school and Ezzy had no one to play with since the school year always meant tons of colds, flu and other sicknesses. If I was too overwhelmed with therapies, cooking high fat meals, or just working through my own junk, Ezzy was there to watch all of Kyre’s firsts. Ezzy was almost 3 when Kyre was born. I watch Ya’el who is 3 now and her phenomenal memory and desires to interactively play with others, affirms that Kyre was sent to a little CF warrior that desperately needed somebody as we lived in our 4 walls, tucked away safely from the world.

With all that said, it has become a very present issue for us now as we see the years of growing up in Ezzy’s shadow is taking a toll on her. Because as time as gone on, Ezzy’s needs have become more time extensive, more detailed, more rigid. It never fails that when Kyre is in need, it is right in the middle of an important therapy or day to day battle of CF.

Having two little sisters has caused the feelings of neglect to well up and erupt at the most inopportune times as well.

Whether she looks ahead or behind, there are others fighting for the space that she has already given up on.

It was Kyre who said “I don’t know” after we asked her how she felt about Veil growing in my tummy. Kyrene had never been shy to show or say her true feelings.

After spending too many nights laying in bed worrying or early morning nursing sessions mulling over her. I recently had some time to see a very tender side of her that I believe is forming because of her life.

Our 14 yr old dog Lily, just passed away. It wasn’t sudden, yet it wasn’t immediately expected. We had honestly been praying a solution would happen for awhile. Her quality of life had gone down and high demands of her care was too much for a family of 7, who already have detailed care plans for a human. When both Richard and I woke and spoke over coffee and shared what had come to us in the morning hours, we knew her time was coming. We did our best to set aside time to show our children how we handle the looming possibility of loss. It meant more work to our week then we needed with the never ending stressors, but this dog was the first living creature we cared for in the early years of our relationship. It wasn’t Cayden who helped the most (the kid that teared up when we weren’t sure she would survive her bear attack this summer) instead it was Kyre Grace that provided a level of hospice care for our dying dog.

Kyre would be found right along side Daddy as they bathed Lily everyday, trying to keep the skin rot smell to a level I could handle. It would be Kyre that would dry her off, get a snack and rub her head when she would come home from school.

Maybe it’s because Kyre knows how it feels to be in need of love when it seems like there isn’t enough to share.

She recently told me that when they go to the library at school that she always gets books on animals while everyone else gets books on people. She rolled her eyes the other day when she told me a joint teacher that shares all the Harney kids, calls Kyre “Ezzy” all the time and she has to correct the teacher.

This year was her turn for a big party. We alternate every other year on a family or big party. So that way we don’t have 5 big parties a year. Richard and I had shared we were excited to see her in the setting of her friends. Not the tag along friends. Meaning the friends she gets to tag along with when they are playing with her siblings. These kids were HER friends. Each invited by her. Yes every single invite had a clause “if you are sick (cough/runny nose we ask you don’t attend). People said, we didn’t tell the kids we were coming until the drive here (because they were holding off, making sure their family was healthy and could help protect Ezzy).

A week out from the party she began the countdown on her own. She couldn’t sleep for several nights in a row, because the anticipation about something being about her was too much for her little soul to contain.

Today I watched my little girl float around the room from friend to friend. Hugs, laughter, dimple laced smile permanently engraved on her face was all that I could see. People had showed up for her, not anyone else.

It was today that I was shown that God has created Kyrene Grace to not be afraid of the shadow. Because it’s in the shadow that she will find others that need her strength and light. She will be able to comfort, offer love and friendship to those who feel forgotten or unloved. It’s in the shadow she takes in the whole picture. She watches, listens and sees there is more to every story. She recently told us verbatim what I had said to Richard when we thought she was eating breakfast, unaware of the conversation I was trying to say with hushed tones.

This intro to another article I found sums up Gracie:
“Children who have siblings with chronic illnesses or disabilities often find their lives are constantly interrupted by medical emergencies that trump regular kid cares like birthday parties and soccer games. These children learn at an early age to put another person’s needs first and are often better adjusted in the long run” (Siblings of Sick Children, Learn a Life Lesson Early. NPR 2010)

I know the design of our family is orchestrated by the one who has written Kyrene’s story. I also now, through the trials I have faced, he has always been faithful to bring me out of them alive and better for it. He will do the same for her.

God is up to something mighty in my child that at times does not feel like she is seen. He whispers to her, in her moments of sadness and heals what only he can, because I have seen her love and care for others when most wouldn’t.

Kyrene Grace, you are 6 yrs old today and even if it feels like the shadow seems too big, I pray that you will see that shadow is a protection God has given you and trusts that you will continue to have a responsive heart and eyes to those who need a tender soul.

Happy birthday my best biggest surprise

I have wanted to write this blog for awhile. But life, you know? I know that most of the mommy friends I spoke to this last month, we all shared the same sentiment. Going back to the school routine and schedule takes so much stinking time to adjust to. Not only was I facing a new routine that was against our whole summer motto of “we will get to that eventually”, but I also was asked to preach, which meant that I would be giving up my fringe hours to prepare, listen, and deliver a word for my church family. To top it off, the back to school crud came pounding on our family’s door, which took more out of us then I anticipated it would. Now that I survived yesterday and did what the Lord asked me to do, I am now free to write this fun memory ❤️ 

When our friends asked if we wanted to join them on a camping trip, we immediately said yes. We were broken in on our Memorial Day camping trip and felt like we were bordering veterans after 5 days at Orton Ranch in July. But when the realization of what the YES would entail, my anxious, overly cautious soul found itself in knots.

 

I did a good job holding it together and not letting Richard or the kids pick up on the fact I had a little person jumping to and fro in my head screaming all the “what ifs…” or better yet “you willingly signed up your family to go through Clarence straight?!?” Or “what are you thinking?”

 

After pushing the little person in a dark closet in my mind, I did my best to move on.

 

So we began to pack our things. Laughing as the pile got bigger and bigger. I even sent a text to my friend saying, “um, I promise, I did leave the kitchen sink behind”.

 

As departure day got closer, the weather forecast was not in our favor. We couldn’t leave a day earlier due to Richard’s work schedule. Both families hoped and prayed the weather would lighten so we could get there safely. The night before I yet again texted our friends and asked “how hard core are you guys?”. My true colors were showing, but I was getting nervous people, there were white caps all over the seas 😳.

 

We woke to the sound of rain beating on our roof and windows. You could hear and feel the gusts of wind as they came with no break. The men loaded the boat up that would carry 12 people to their much anticipated destination. When Richard walked back into the house, not a single thing on him was dry. He even got soaked in the monsoon while wearing heavy duty rain gear.

 

I sent a text to my mom and our bonus parents, asking for prayer. We loaded up and placed our faith in God, but also in the fact that our boat captain, my friend’s husband is an experienced boat captain and diver, Clarence straight was not foreign territory to him, he had been in seas, much bigger then 5 ft, which is what we were going to face.

 

The boat ride…well…

 

Puke ✔️

Sea sickness meds ✔️

5ft seas ✔️

Stressed out sarah ✔️

 

The rational side of me was fighting with all its’ might to chill out. But let me tell you, it had a mighty opponent to face. At one point the boat captain mentioned my white knuckles that hadn’t let go of the metal railing since the first roll was hit. It was clear that I was not enjoying the lovely southeast fall storm.

 

Then as I started to breathe, as I fought to keep my stomach from joining the other stomach that was now in the A&P fried chicken container, I began to do what I always do when I am stressed. I started to sing.

 

“You walk on waves, you run with clouds, you paint the sky for me to see, your majesty, your majesty is why I sing”🎶

 

It’s funny how I could have solved the problem 45 mins earlier if I had had my heart in the right posture to acknowledge that the maker of the waves was in control and that he loves me more then the waves crashing, I could have handle those seas so much better.

 

We arrived to a quiet little cove and saw our cabin that would be our home for the next few days.  Kids had boots on in no time to board the skiff that would get us to dry steady land, but it was the mommas that made sure we were on the first trip over. Little babies that needed to be fed had put their requests in.

 

We were completely blown away with the cabin. Full kitchen with real counter tops and running water, a couch by the wood stove and big windows to sit and look at the beauty our Heavenly Father created.

 

The kids were let loose to explore their new surroundings and we began to unpack our gear and set thing up while the men ferried it to us from the big boat.

Our first night we dined on halibut and did our best to dry out after getting soaked from earlier in the day. The rain didn’t stop the kids from exploring and there were wet clothes, muddy boots and countless layers that would need to hang dry all night.

 

The kids were all piled in one room together which meant that bedtime was a figurative time frame and it came with lots of laughs, giggles, songs and flashlights going every direction.  

 

Thankful our sweet little babies slept through the nighttime shenanigans and let the adults stay up and share stories, views on the current world issues and the heart/mission of the church.

 

I have found as social media has become a bigger giant then I think people realized it would in the last 10 yrs, forming and building relationships can be really hard. People can save the “best” of them to only show the world and edit and delete the heck out of anything. True, transparent, open dialogue is hard to find. Add being a parent to more the one child makes it even harder with the need to keep countless appointments in check. Then add a kid with a fatal disease to the mix and it is SO hard.

 

We had prayed and prayed as a family, that if the lord intended to give us rest from the hustle and bustle he would protect Ezzy and the other kids from colds and we would be able to go with everyone being healthy.

 

The morning light came way too soon for parents that stayed up like they were young 20 somethings and didn’t have a care in the world. Thankfully our friends had coffee perking as soon as little feet hitting the ground was heard. After a big breakfast we ventured out on a hike with the kids.

 

Did we hope to see deer?

 

Um, yes.  

 

Did we expect 8 kids under 9 to be quiet in the woods?

 

Um, no.

 

But I will tell you, it was fun listening to the conversations going on. To listen to the questions that would pop into inquisitive minds. To hear how the kids would answer each other’s questions. Relationships were forming. Even with the purest little souls.

 

We stumbled on a baby fawn and got exited and hoped that a daddy might be around later.

 

We didn’t see anything, most likely because we had scared anything with working innate self preservation away.  

 

But after 4 miles we had worn out tired kids that had brought the level of crazy to a manageable level.

 

I had a chance to sit and talk with my friend as the kids played in the break from the rain while the hubbies set the skate. Honesty was delivered. On both ends. My love language: quality time, was met in abundance with her that afternoon. I never ever intend to come off intimating, yet I get labeled that a lot. But praise Jesus, he brought her to me, because as we walked through, talked through some of my giants, she gave me solid Kingdom principles, not easy to hear, but spoken in truth and love.

 

When the men had developed a plan to go hunting early in the morning we were given a brief gun lesson. Neither of us had loaded and shot a gun in a long time. If we were going to be left on our own with little kids that embraced the freedom of camping life and had shown a tendency to go farther then yelling distance we needed to be equipped.

 

The second night came quickly and was met with tired kids that had found their sleeping bags calling them sooner then the night before. We were blessed with another night of conversation and laughter and even more assurance that our friendship would not be brief.

 

The next morning while the men were out hunting, we fed hungry tired bellies and prayed that we would have fresh meat to eat in the evening. The kids enjoyed their pancakes that were made with the benefits of their labor from picking the afternoon before.  

 

Our quiet afternoon of card playing, being slaughtered at go fish came to an end when a bear cub was sighted and no momma bear to be seen. And you had better believe that of course kids were much farther then we had wanted. We managed to get them safely inside the cabin and felt comfortable enough to put away the gun.  

 

Nika, the most efficient guard dog refused to stay inside with us and sat out on the porch watching and guarding her family.

 

The kids went to bed in record time that night. We were all tired and feeling the effect of the long days of “relaxing”. Plus, feeding them marshmellows with a required promise of going to bed without resistance helped. We ended our last night staying up again, forcing an escort to beam a big light on us yet another night as the moms escaped to the outhouse, and went to bed with light hearts that had been heard.

 

We worked hard to pack up our gear and get the cabin put back together, it was our goal to leave it cleaner then what was left for us. We all found our roles easily and laughed at how we got the whole “commune” mentality. The kids enjoyed the low tide and explored all the way up until it was time to say good bye to our temporary home. (Even boo bear had to help haul gear 😉)

 

We weren’t ready to go back to the demands of life. Even though we were tired and wanted the comforts of our own homes, beds that didn’t squeak with each deep breath taken or the bugs that taunted poop covered hands to be swatted at on top of a head 💩🤢 or being eaten alive each time we stepped outside, we had all enjoyed this getaway.

 

Our souls need it, I didn’t have the forethought to know that this trip would be as meaningful to each of us, including Ezzy as much as it was.  

 

When we got home we asked each kid to tell us what was their favorite part of the trip was.

 

Cayden: the hunt with Adam and daddy

 

Ezzy: getting to sleep with everyone in the same room

 

Kyre: ALL of it

 

This trip was possible because of a dream a little man made. Because of a big goal that he dared to set and better yet accomplish. Each therapy session was done thanks to the generator. It even allowed for a mom to pump and get some relief. Because of Cayden’s heart,  Ezzy got to experience something so little, yet so huge in her life: a sleep over 3x.

 

After our recent trip to Seattle and the news of her lung function dropping, warranting the need to start a drug that when we first heard about it, her team said she wasn’t in need of. Her lung function has always been above normal, so much that when she started to do lung function tests, they didn’t have other 5 year olds to compare data with, because most kids that age can’t mentally and physically do them properly. But Ezzy hit them out of the park each time. This has allowed them to monitor her lung health more closely over the last 3 years.

 

So when a dip showed up along with a lung infection that wasn’t responding to antibiotics, our doctors came with the heavy news of her now being a prime candidate for the astronomically priced medicine. After years of being told she was above the norm, we had to hear from the doctor who has cared for her the last 7 years that she was finally in a normal range, which to be honest we don’t ever want her to be described as a normal CFer, we want her to not be the norm.

 

Armed with the information on the possible side effects of the medicine: tightness of the chest, cataracts, and liver enzyme elevation, we still left with peace.  

 

Peace, true peace, peace that rushes in when the weight of the world, its present troubles are piled high, when the peace of the Lord pours over you, you can’t help but breathe a sigh of relief.

 

The side effects, the high cost of meds ($300k a year), the decline in lung function, the realization that Ezzy will at times not get better despite the countless hours we dedicate to extra therapy sessions, time spent on high calorie meals, prayer, exhaustion from doing things on our own strength, the unending emotional battle a caregiver gives as they watch their loved family fight. All of those things don’t stand a chance against the very fact that Ezzy is and will always be God’s child, not mine. We have to actively choose to believe and trust he is always going before her.

 

There is going to come a time when I need to remind Ezzy in the midst of her tears about life being unfair of the time we all piled in a boat and watched ice age on repeat and tried to keep our food in our stomachs or watching Moana every therapy session

with everyone huddled around her and mommy’s iPad or cornering the gentle giant Adam and talking his ear off when he finally found a moment of quiet or the time when Autumn showed no mercy at go fish or the sweet baby Grayson who saved all his best smiles for her, every time she asked to hold him.

 

Thankful God is faithful to fix our eyes on the people he brings into our lives to help lessen the weight Cystic Fibrosis can bring to our family and their hearts to provide opportunities for us to make special memories with our warrior.

 

“That is why we never give up. Though our bodies are dying, our spirits are being renewed everyday. For our present troubles are small and won’t last very long. Yet they produce for us a glory that vastly outweighs them and will last forever. So we don’t look at the troubles we can see now; rather; we fix our gaze on things that cannot be seen. For the things we see now will soon be gone, but the things we cannot see will last forever” – 2 Corinthians 4:16-18

 

 

 

I just ran into my former OBGYN today. I was unloading the clown car, you know, the one that is really small, yet there is a continual flow of bodies exiting it at a rapid pace. 

“Well, hey there, look at that crew”

 

A quick turn revealed the identity of their voice, while I kept my hand on the door ensuring the poor person who was parked next to us would not have a permanent mark from a Harney child. I soon saw a gentle kind face that I deeply admire and am thankful to consider not just the person who helped deliver 2 of my babies, but actually a friend.

 

He walked right up to her, she gave him her gentle tender quiet smile.

 

“Can you believe tomorrow will be a year?”

 

“What? It’s crazy”

 

This seems to be the best way for me to describe how I feel about this little soul.

 

It’s when I pull out the next size of baby clothes and recall the times her older sisters wore them that I remember there was not suppose to be another bonus harney baby. Those clothes were suppose to be boxed up and headed off to good will. Actually truth be told, when we moved and bought our house there were a whole bunch of baby clothes that were suppose to be sorted through. Our move became a mad dash to the finish line which meant quite a few things that were stored in storage never got looked at before moving. It wasn’t until we started going through things during the winter months would we find out there was a baby bean growing inside.

 

Veil Eden Harney, baby bean, Veil-z (brother’s favorite nickname) is so precious. Actually we say all day long, “she is just SO sweet”

 

After raising 4 other babies before Veil, each with their own personalities, commonalities easy to see, differences apparent, we can honestly say, she is just the sweetest soul.

 

Over this last year, Veil has easily woven herself into our family and no body felt displaced by her presence. I believe God knew what a busy family with 4 kids under 8 could handle when he began to knit her inside my womb. I ran out of time in my days during her pregnancy and realized it wasn’t until bedtime that I thought about her or did a kick count. I would worry and fear, “if I am just now thinking of her at 10 pm, what am I going to do when she is here?”. I knew I was already stretched to what seemed to be my limit.

 

The gentle tender spirit God has placed inside of Veil is one that has been the biggest answer to my former worries.

 

Veil has a soft little voice, she will pull her binky out and look you in the eyes and say what is on her mind. Not loud, not husky like Yaels voice was as a baby. Just soft and sweet. When Veil wakes in the mornings, she will wrap her arms tight around your neck and press her body into you as if there is too much space separating you. She will sigh and will make time stand still. She is the very response a soul, toiling on this earth hopes to receive from another living soul.

 

Veil loves to explore and the running joke is “where is Veil? Finding trouble again?” She is inquisitive. I have watched her just sit and watch something, the wheels in her brain fast at work. She will hold, turn, look at something for long periods of time, unlike an older brother, who would pick something up as a baby and immediately assess its weaponry ability. Richard and I love watching her experience new things.

 

Veil is patient, never demanding something right away. She will give a hint she is in need of your assistance, but she will look at you and give you a look as if she is trying to say “it’s ok, I know you are busy, so I can wait, but please don’t take too long”. She can easily entertain herself as she waits. Unlike Kyre who had the same sense to be patient, but would lock her eyes on me, watching and waiting for me to fulfill her request. Actually Kyre still does this…

 

In the last few months Veil entered the big leagues and decided food was worth giving a 10th try. She loves to eat and be a part of family meals. My gestational diabetes diet I had with her has paid off and the things she loves most is lean protein, beans, veggies and fruit. She is by far the best eater I have ever had and will even sigh in contentment when she thoroughly enjoys a meal.  

 

One thing that has eased guilt over Ezzy’s hard start in life was met with Veil’s easy going nature for her middle of the night feedings. I blamed myself that Ezzy wasn’t a cuddler, that she could nurse and be so easily put down, no longing for her parents arms, it was as if she didn’t need me. Silly I know, but I chalked it up to the fact she was held so little the first month of her life due to being in the NICU, recovering from surgery with a whole bunch of intimidating wires connected to her tiny body. Veil reminds me of Ezzy, she wakes, no frantic cries, just a simple “momma” and is easily nursed to sleep and snuggle into her bed as soon as her tummy is full. We are so blessed she is a great sleeper.

 

I am still her favorite person. She will tuck into me, pulling all extremities close into her body to inhibit hands pulling her out of her favorite place. I love the way she plays with my hair during our quiet moments while she nurses. More so, I am so thankful a friend told me that she rocked her babies to sleep every nap and feeding. I had become the “veteran expert” that didn’t think she needed to learn anything knew. That was until I realized how amazing it is to rock a baby to sleep, cradled safely in my arms. I have whispered songs to my king Jesus with her, I have kissed heavy eyes, I have rubbed little feet and a back, I have been present in the fringe hours. Why do I call them fringe hours? Because the 4 other Harney kids were not rocked to sleep, we had mastered sleep training and I refuse to say it was wrong, because there are so many ways to do things, but I needed those fringe hours, the extra moments to get something else done in a jam packed day, but what I have with Veil has been so precious.  

 

I have successful cloth diapered her this last year and stuffing diapers becomes a family thing. Never would have thought this would be part of my mothering story, but when I quickly did the math, it turned out to be a blessing financially for us. Thanks to a thoughtful friend who gifted us her stash!

 

So many things I thought I knew about parenting have changed with Veil.  

 

My inherent need to be on time, have everything in order has morphed into a more realistic expectation. Why I thought I had to be 5 mins early everywhere I went, have each child dressed to my standards and everyone emotionally in-check is just plain crazy.

 

I am rarely ever on time now, my car has layers of life on the floors. My kitchen table and chairs, cleaned a minimum of 3x a day, still have a base layer of goo…gross…but I am getting real with you. I laugh at the fact that 70 % of the pictures I take have a basket or two of laundry in them…laundry day no longer exists. I can’t remember the last time I cleaned my windows, no dead bird clean up happens on the Harney property. It never fails in the early morning when I am trying to sneak off for my me time in the form of a run, that I manage to stick my hand or drag my sports bra through partially dried toothpaste from the night before on the bathroom sink. My walls that have permanent marker, yes that, fuzz stuck on the goo left over from a massive squirt of medicine Ya’el sprayed across the living room and even egg people drawings from kyre’s expressive stage. The floors that once were pridefully noted to be clean enough to eat off, no longer stand a chance to be in that category anymore.

 

The birth of our number 5 didn’t break me.  

 

The birth of our number 5 didn’t make me lower my standards.

 

The birth of our number 5 reset me, she has helped me set my eyes on things above, not on things on this earth that store moths and rot. Instead the birth of Veil Eden has caused this rigid soul to slow down, to let things go, so more important things, matters of little hearts are attended to before the OCD monster gets in its way. Veil Eden has given us all a pass on being caught up in the world’s constant demand to stay busy and instead choose to be present and put family first.

 

Veil Eden, I thank the Lord every time I kiss your little toes that have mastered walking. I dream of the woman of God you will become as I experience you dance and clap your hands to worship music. I look forward to retreats you and I will keep taking when our loud family members consume all the space and air in the house, leaving no room for our quiet souls. I appreciate your playful spirit that already knows when the right time is to ease the current setting, may you always seek to bring joy with you wherever you go.

 

Happy 1st birthday baby bean

 

I can’t help but write about the experience I just had over the last 5 days. Partly because I love writing things down and making sure they are stored safely so we don’t forget the memories we are making. Partly because I need to share what the Lord is teaching me, many times through my slow surrender to his work that can be painful at times. 

When I first heard the announcement at church there was a need for volunteers to step up for our church’s kids’ camp, I didn’t even give it a second thought. In one ear and out the other. There is no way I would sign myself up to go and live in the outdoors that would make me give up the one luxury in the world that I rely on to make me feel like a human being. A hot shower for me is never long enough, there always seems to be an intruder who invades my 7 minutes of me time, yet I still know how it seems to reset me as I wash away the day. A hot shower would be something I had to forsake and find a way to still be nice to people.

 

After another announcement was made about needing volunteers, I found myself being approached by my husband on the drive home from church. He said there were 2 positions we could fill that were still in great need. I heard all the things high on my list screaming in my head, fighting their way from my head to my mouth, trying to be the first one in line to be heard. Before I could say anything, my husband said “and Ezzy could go and be a camper, actually we all can go AS A FAMILY”.

 

Thankfully after years of being my best friend, sounding board, husband and the person who knows me better then myself at times, was ready for the silence that would come from the bomb that was dropped on this control freak, introvert, rigid soul.

 

Yes, the fears and doubts haunted me after I started to work through whether or not we could pull this off. The realization that the list of needs Ezzy would have could be my out, were soon squashed as we were affirmed countless times that whatever she needed, it would be taken care of. The generator Cayden raised money for would be the solution to one of the hardest scenarios. Her treatments would continue, nothing would stop her from her hours of therapy that needed to be done each day in the great outdoors.

 

Surrender.

 

The tug and pull, the dance that I seem to do with the Lord more times then I should, resulted in the very heart position the Lord wanted me in.

 

I said “YES”. Surprisingly was met with peace and we began to plan for this big adventure we would be taking.

 

A few days before leaving, we were presented with information that wanted to rob us of our peace, we sat in our living room after putting the kids down and asked each other “are we being careless? What if Ezzy gets really sick? What if she has a freak breathing attack? What if the baby chokes on something and we can’t get to the hospital, what if…what if…what if?”. We sat in silence. We turned on the Office and tried to drown out the ploys of the enemy. I prayed, talked with the Lord and heard him speak so clearly. I shared with Richard what the Lord said and we agreed. He had given us peace when we said yes and it is the enemy’s desire to stop us from following the plans the Lord makes for us.

 

After successfully packing 7 people for 5 days off the grid, I relented to the final pieces of me that couldn’t handle the unknown.  

 

At the leading of my husband I went for a quick run, well long run and ended with the most amazing experience. Those deer were fast yet so friendly!

 

We were tasked with leading 11 kids and 2 babies that had to be worn on a 2 mile hike to our destination after our 45 minute boat ride. The terrain was not little kid friendly, it was not for the occasional walker. It required determination and also the ability to distract and encourage 11 kids under the age of 10 to want to keep walking and stop asking “are we there yet?”. Even though we had a scary incident happen just minutes from the camp grounds, we pulled ourselves together and tried our hardest to not get discouraged. We were all alive, the injury turned out to not be serious and the momma bear and her cups that had just been seen at the trail head a few minutes earlier did not cross our path, thank God.

 

When we saw where we would call home for the next 5 days, Cayden said “oh mom, I think this is what the Garden of Eden looks like!” It was the greenest lawn, adorned with some cabins and a beautiful flowing river full of salmon and seals. I will admit, my breath stalled and I found myself wanting to run and join all the laughter that was heard from the trail. We were the last group to hike in and the others had all been able to explore the grounds. (If you ask me Ezzy’s drawing depicts the beauty of this place perfectly)

 

I set up myself and the girls in the cooks’ quarters and sighed as it began to sink in this would be home, away from Richard, away from a fan and black out curtains, away from my comforts.  

 

Thankfully after dinner and a chance to tune my ukulele I found the gathering hall to myself and a few others getting ready for the first group session. I asked the Lord what to do and he told me what to sing. After welcoming the Holy Spirit in song, I knew why the Lord had asked me there. Then began my job of always resetting and getting the gathering hall ready for the gospel message to be presented to the kids. As soon as the meals ended I would grab my uke and have a mini worship service while people prepped for the next activity. I was blessed by other souls who needed the time of worship before going and serving young souls. We all felt lighter after we sang from our hearts.

 

Our mornings started early thanks to my little girls who didn’t know what to do with the daylight and silence. I found there was a benefit to having the early wake up call because it let me get them ready and myself before leading worship for our early morning staff meetings.

 

Richard and I, the two people who can’t seem to handle receiving help, soon found ourselves slowly release our pride and hand over Veil or Ya’el in moments we were needing to fulfill the roles we came out to do. Funny how the burden we saw in our pre conceived notions were squashed in the joy that was met as people got to receive the most tender genuine hugs from two little girls who were loving all the extra attention.

 

We managed to figure out the best times to fit in Ezzys therapy sessions. She may have had to skip nap time or get up earlier then her bunk mates, but she was able to keep up with her treatments. The first day we didn’t plan right and the Lord went ahead and planted empathy upon her friends, who gave up campfire/free time to be with her.

 

Richard was a able to have some powerful moments with his team of campers, he was challenged, he was inspired, and we was living out his calling with abandon as he helped lead children to the Lord or to a deep walk. He was given the nickname Mr. Steele from the campers and campers from other groups waited patiently for him to assign them their own nicknames. He was even blessed to have a friend be his co leader, which allowed him to relieve me from time to time so that my back could have a break from wearing a baby that just wanted to crawl on the nasty floor.

 

I was blessed with an evening kayak adventure with some amazing strong ladies and we met five seals that followed us around and poked their heads up to check us out. There was a moment when we were all silent and you could hear the birds calling, the water running through the forest, the seals breathing on the water and the wind moving through the trees. It was unreal. It spoke volumes over my soul that was overstimulated with 51 kids and it rebooted me to keep going and gave me extra energy to keep pursuing connection with these kids.

 

The 2nd to the last day, we watched our kids enter into the waters of baptism and I think Cayden’s words summed it up. I worried if he understood the magnitude of the decision to get baptized. I wasn’t sure if it was the right time to let him do this. Ezzy, in an intense conversation led me to believe she was ready. With tears streaming down her face she said “I am a sinner, I need to be baptized and for Jesus to wash them away”. I don’t know why I struggled with their choice, but as the tears fell from my face and a few others around me, I knew why God had called our family to Orton Ranch.

 

My feelings of inadequacy and an imagined view that I had to fill shoes bigger then mine, left me fearful and timid at times. Yet on the hike designed to help us hear the voice of the Lord, I heard the lord sing over my soul “called, you have been called here”. I won’t forget what I saw, but it was delivered straight to me in the moment I needed it the most.

 

Watching the kids worship during each service, singing their hearts out, asking me to sing certain songs and even letting me explain what the lyrics meant, which resulted in one little girl telling me “I want Jesus in my heart”, renewed my soul. It reminded me of those adults who took their time to pour into little souls, including me so long ago, that could handle the gospel message and not fight it with the adult mindset that struggles with matters that call for faith.

 

I got to hear stories of kids accepting the salvation message and asking the Lord in their hearts, I saw tears fall from counselors faces as they shared how hurt, tough, broken kids were showing signs of the impact they were making in their lives.

 

The mouse and bat incident might have sent me packing the first night, the stench that grew with each day as 75 people didn’t shower, the long days and short nights, the layers of bug dope, the bear warning bell, the weak coffee and damp air that left clothing I had never worn outside, wet. ALL of that can’t steal from my heart what happened at Orton Ranch.

 

It really was a glimpse of Eden.

 

I built relationships with people that I will never be able to say it wasn’t worth it.

 

If you could pray for Ezzy who has a cold, we would gladly accept it. We are trusting our father is in control, he doesn’t leave things unturned and he is holding her tightly in his hands. But it never hurts to pray.

 

If you could also pray for wisdom and discernment for Richard and I as we act on something we feel the Lord tugging on our hearts.

 

Love to you all who took time to read this

A recent run has brought me to this place. As you have learned while joining me on our family blog, there are quite a few annual blogs. Birthdays and anniversaries seem to be things I am really motivated to document. I had accepted this year I might have to bypass my tradition and not write my thoughts or what I am learning. I think shame and frustration were the champions to whisper that defeat. But as I listened to one of my favorite podcasts, I knew that what I am experiencing is real and is maybe for you too, to somehow let you know you are not alone. 

11 yrs.

I won’t rehash our marriage. Go through pasts blogs and you will see I have been very candid about married life with Richard. Last year, when I shared the top 10 things I have learned in marriage, I cringed. My breath might have stalled as my loud beating heart took over after I hit the publish button. It was one of my most open, nothing held back blogs. Much to my surprise I had a lot feedback. Funny how the deepest, scariest things we share are the things that can draw authentic people in…

So 11 yrs. 

As I have pondered on this timeframe, 11 yrs of marriage, 17 years of being in each others’ lives. I keep hearing a title, one that I have recently embraced as my season, maybe as my life long banner: Broken for His glory.

I was sharing in my safe little bible study group recently something I had despised and quite frankly caused many fights, silent treatment and resentment was now gone. Wives, it was the dirty underwear left less then a foot or two from the laundry basket. Years and years went by. Didn’t he get it when I chewed him out? Did he think the dirty underwear fairy came every morning to gather them up and magically wash, fold and put them back in the closet? Of course not, because me, this fairness, justice seeking wife ensured he knew no such fairy existed. As I was working through frustrations with the Lord, it was placed on my heart why I find that dirty underwear not it it’s assigned place.  

He is typically in a rush, a rush to come help me with the kids or better yet serve his family. He isn’t going down Sarah’s list of tidiness. Relieving me so I can make dinner or letting me shower while he starts breakfast is where his mind is at. 

Why was I willing to waste so much energy on something that was the remnants of his desire and willingness to attend to my needs? 

It took 11 yrs to learn this.

We had an opportunity to talk to a young couple, still in the dating phase, but looking like they are headed into the direction of a big choice. I love those moments when we get to do things together. Sentences are finished, we are animated, we feed off each other. I often wonder what it would be like working with him…

As we shared key things to think about it brought up something I like to hide inside. 

We shared why we have higher moral standards when it comes to TV shows. Sounds so silly, archaic, maybe even cheesy. I have seen eye rolls, defense arguments have been delivered my way, I have been told my/our standards are too far. Yet as I shared with the young man why this was so important, I saw it clicked. You know what I said? I said it’s his job to cherish his partner, to honor her not just by his mouth, hands, deeds, but also his eyes, the very things that are the gateway to his soul.
I am so passionate because Richard had to work his way through a very guarded, walls built wife. 

11 yrs ago he took my baggage.

I have 4 little ladies. Trust me the weight of these gifts is too much for me at times. Yet I also see glimpses of Gods goodness and redemption in their little souls. I believe he knows I will fight to teach them, guide them, help them understand why they need to have high standards. Standards that won’t make them many friends at times, standards the world will laugh at, standards that set them apart.

Those standards were things I didn’t have the chance to live out in my adolescence. 

There is a young teenager that makes me think so much of me. I don’t know her whole story, honestly I don’t really even know her, yet I KNOW her. I know the emptiness, the constant searching to just be loved, the self preservation to take care of her needs and attain them anyway she can. Ultimately being on the search to finding true acceptance. 

When I see her, my past, it’s yuckiness, the baggage of my choices are piled high on that insanely expensive airport luggage cart. Each bag is labeled “fragile, contains explosives, cold, hot, damaged, keep this side up”, etc.

My choice to not keep a standard that demanded respect and better yet set boundaries for me to experience true love and acceptance meant Richard had to marry a woman with not just any baggage, but spiritual baggage that resulted in the choice I allowed my soul to be tethered with others in my past.

For 11 yrs, I have been slowly unpacking.

No surprise here, but I don’t adapt well or quickly to change. Richard has learned this very fast. Thankfully he sees the warning signals and backs away very slowly before damage is done that neither of us want to experience. He has waited, pursued and asked how to help me work through my stuff. In the end, we both learned the only person who could help me unpack my stuff is our Heavenly Father.

11 yrs later, healing is happening.

I don’t think there is any big “this is the only plan”. But I will tell you there is one factor in why healing is happening. 

GOD.

As I read his word more, as I hide it in my heart, as I meditate on it day and night(seriously I do), I find out who and who’s I am.

My Heavenly Father is healing the wounds that have left me an embittered, difficult, stubborn, and yes still a stand offish wife when the valleys seem too deep and too close together.

I don’t believe this healing couldn’t have happened had I not had Richard though. Faith for him comes easily. If God says he will do it, Richard believes it. He doesn’t spend days, months, every single second questioning God on every what ifs. So his faith in the things unseen, the things yet brought into his glory, he truly believes they exist and he will see their existence one day. Case in point, he believes he will have a wife that will no longer be trapped in bondage that Christ freed her from.

Even though something as minimal as seeing his lack of laundry etiquette not an insult but instead a byproduct of his heart that wants to care for me in ways I was not cared for or witnessed personally seems odd, it’s proof of healing for me.

Guys, HA, if you even read my lengthy, wordy blogs, you know that ones that seem to make your wives cry or say “hold on”. If you are reading this and have seen there is something that is holding your wife back, will you do me a favor? Will you bring her to the mighty healer. Will you seek him and ask him how to love her as the Lord helps her unpack her junk?

Ladies, if you have an elephant in the room, the thing that will send you running to the chocolate, wine, obsessive workout schedule, social media dependency, unlimited need of acceptance. Will you take a moment and ask yourself, how is this impacting my marriage? What baggage are you choosing to pack and lug behind you, sweat dripping off your face? Do you want to be free from it? 

11 yrs ago.

I said yes to a man who didn’t know God. I said yes to an idea of something I had no clue about. I said yes all while trying to hide and not deal with my stuff. Yet God in his promises that seem to never end, has helped me not be known by my baggage. Best of all he has given me a spouse that sees me as a masterpiece, something that was made just right for him, someone he wants to hold onto tightly and squeeze, yet releases me to the one who can repair those hurts. 

I have recently found myself finding little ways to show him my appreciation (be his helpmate) more importantly thank him for his patience. For not running the other way when it finally hit him how deeply messed up his wife was. 

His faith has helped him in marriage see his wife was broken for Gods glory to shine through in what seemed impossible. 

So a little incentive. Help her and she will help you. 

Happy anniversary to the other half of my soul.

Since her first day here on earth, Ya’el has consumed the space she is in, you know when she is in a room, its like she has a magnetic pull. Your negative energy is drawn to her positive. I should have realized then her soul would have a power to draw people in. At just a few hours old, she was bright eyed, eyes wide open and I remember just staring right back at her, into her dark eyes.

She was so alert and so aware of the new shapes, sounds, and smells that where taking place.

Flash forward to 3 yrs later and I have to admit that she is still living her life with abandon. She sings at the top of her lungs, neck muscles strained, diaphragm engaged. Songs seem to be one thing that calms her need to always go, always think, always explore. When she is strapped to her car seat, freedom stripped from her, you will hear countless songs. Yes, she sings songs that you might recognize, even with her 3 yr old vocabulary skills. But most of the time the songs you hear will come from the many different things her little brain has processed. 

Ya’el feeds off emotion, but not in the way her big sister Kyre does. Ya’el loves to observe, contemplate and reason why those emotions took place. She doesn’t need to take ownership of them and make everyone else aware of them, like Kyre does. What Yael does is ensure you know she sees and empathizes with you. She will stroke your hair after a hard day, hold your hand when tears seem to be beckoning your name, but she will jump and laugh if joy is something stirring up inside you too.

I have realized that when she carves a place inside your heart, it’s as if you need her to acknowledge your presence when she enters a room. It’s like when the guest of honor has finally shown up and you are praying deep inside that you will be pulled from the crowd and asked to sit in the place of honor next to them. I can’t explain it, but this is true about her. I watch it unfold everyday with her siblings and her few close people in her little world. She will stumble out of her room and daddy is first to say “morning boo bear” as he scoops her in his arms. 

Cayden will force Ezzy to share the couch to allow her to squeeze in and catch the morning cartoons.

Ezzy holds every ounce of patience she has in her body and only gives it to Ya’el throughout the day. 

Kyre will run her fingers through her hair and bow down to her eye level and say with the sweetest voice “Ya’el , do you want me to help you get dressed?”. 

For me, it’s when I walk in the door after my morning workout and say hi to the big kids and look for those two little eyes that seem to have no iris, just to be met with them. There is rarely a smile, instead it’s as if she takes a moment to read me, then after I say “morning Boo”, she looks at me with a corner smile and says “morning momma”

This last year, watching Boo fly through the terrible twos was somewhat ok. I have had milder 2 yr olds and I have had stronger 2 yr olds. She had to spend most of this last year being replaced as the baby and graduating to big sister. 

I was concerned her favorite spot in my arms that was diminishing quickly would leave an embittered toddler. This was the child that would smack my hand away when I began the weaning process after finding out about Veil and training for a half marathon. She would dig into my body and not relent. She knew what she wanted and even at 19 mos old was so firm and unwavering in it.

As she soon realized Veil was a permanent fixture in this family unit, she adapted like a champ.

It has been with relief and thankfulness to watch Boo want to be a big sister. I think that cord of empathy woven deep within her makeup finally had a purpose in her little life. Veil has been soothed countless times with a gentle head rub and Ya’el’s current song of the day.

Ya’el hasn’t lost her secrets that she likes to hold within her as she entices you with her smiling eyes. Playful a term we say a lot about her is an understatement for this kid.  

Richard has not only encouraged her trickster behavior but also welcomes it as a sign of love from his “favorite”. The kids all know they are loved equally and in moments of seeing Ya’el wrap her daddy tightly around her finger, they all pat her on her head and say “whatever you want favorite one”. Her favorite trick, the one I wish she would move on and find another is locking us in the pantry…she will sit in the kitchen while chaos is taking place and sounds can muffle her presence just enough to make her hidden and as soon as someone walks through that door, bam, we find ourselves at her mercy.

I am forever grateful for the people who have won affection from this terrific 3 yr old. It is a blessing to see the love she is given, because she loves so deeply. I have been told many many times by one of her favorites “can we just freeze her at this age?” I see the smiles that can’t be contained, the willingness to carry her around, push her on a swing, blow bubbles with her, or any other agenda she has created for the day.  

The world is a brighter place because of her and when I see her slow down and take something in, I have trained myself to stop immediately, sit beside her or down at her level and look around. Because if is something causes this ball of energy to be still, then it’s worth finding out what it is.

 Her dream of blowing bubbles and having lunch at the beach is on the agenda for her party when Kalli gets back.  But her annual birthday number pancake will have to do until we can celebrate another year with our Boo bear and friends and family. 

Ya’el Ariel Ruth, I thank the lord his plans for our family were bigger and crazier then we had hoped for. I don’t regret a single day putting my master degree on hold and have loved every single day of being your momma, even the day I told your dad all I wanted for Christmas was to never go grocery shopping with you again after the nightmare I experienced with your awful tantrum. 

You have won me over and over with your spunk and I feel honored you are mine. I want and look forward to learning how to love and give empathy to those around me, knowing for certain you are going to teach me.


Happy birthday my 3 yr old

When we first mentioned our plan to take the family camping I will tell you we were met with some eyebrow raises, eyes widened and words that articulated the looks on those faces very well. I did not go into this camp out naively. I was very aware that this was going to be quite the feat to accomplish, aside from CF being part of the equation. 

Ezzy didn’t miss a single treatment and I know she/we were covered in prayer. She had a freak situation happen a few days before that left us scared. Her lips turned blue and she couldn’t catch her breath. The only thing we can think is it was due to her missing her morning nebulizer treatment. We had forgotten to steralize her neb cups the night before (yes, it can happen, even though we have to do them all the time) and they were in the process of getting cleaned. She can’t miss her treatments, they keep her airways open. They are not negotiable.

 

But first I have to acknowledge something that I think most of you know, but I still need to say it. I want to believe down the road when these little humans I am raising are grown, they will look back at their life stories I have written and smile, cry, laugh, or feel something as their eyes meet these words. So I have to say, this camping trip was the dream of a little almost 9 year old, who after seeing what the obstacles were, he made a plan, worked incredibly hard, and most of all achieved it.

 

7.5 wks of early mornings, injuries, mental defeat, indoor track time and logging some crazy miles all over this island resulted in him carrying a campaign to raise funds for his sister. Each time we went to Timber and Marine to drop off funds, the young man would ask, “how far have you run this time?”. I love how people took the time to not only support him monetarily, but also with their words. If you didn’t say something to his face and said it to me or through facebook, I let him know every word of encouragement, praise and acknowledgement said on his behalf.

 

To the donors, thank you!

 

To Cayden, my one and only son…you know how I feel about you…every single run, you were wrapped in my arms, met with a kiss on your sweaty forehead and heard me tell you “son, you are amazing! You are like no body else! Wow, I am so proud of you! Can you believe you just did that?? That is crazy!!!!”

 

As we prepared for this little getaway, we started making lists of what we thought we needed and then in a moment of nerves I made a post on social media and asked everyone what we should pack.

 

I was really thankful I did this, because there were some no brainers on there, that in my stress of trying to pack everything but the kitchen sink, I realized I was overlooking small things, like uno cards, which provided hours of entertainment while Ezzy did her vest. I also felt I was given a pass on having to slave away cooking elaborate meals over the campfire…why? Because of stupid Pinterest. I am so glad a mom said to keep the meals simple. Those were the meals that my kids loved and enjoyed. Meals like oatmeal or tacos in a bag were a huge hit as we gathered around the fire.

It took 2.5 full hours to load up the car. Yeah.

 

I had warned the hubby we should start sooner, he informed me multiple times that I was overthinking things and it would take us no time. After my decision to not be the squeaky wheel I relented and closed my mouth. An hour into packing, shirt off, sweat rushing down his face I heard him say “this is a lot of stuff!!!” He quickly realized everything wouldn’t fit in one trip and we were so glad my mom decided to follow us out to the campsite last minute so we could fill her car too. You would be proud of me that I didn’t say “I told you so”

 

We set up camp, while finding out that the Harney family was declared the premiere meal of the weekend by the mosquitos and no-seeums in the area. The “no Deet” bug spray that was coating our bodies with sticky film, was just an appetizer for those stupid bugs before they reached their main course. Thank God my mom found our favorite bug spray at the local grocery store right before heading to the site. We were an oily oily mess the whole weekend, but at least not covered from head to toe in bites.  

 

Bringing the kids’ bikes was such a great idea and I loved catching glimpses of Ezzy’s and Cayden’s heads shining in the light between the trees as the whizzed by all the sites. The whole camp ground was full with other little people and if you stood still you could hear their muffled laughter with the crackling of the fire, the chirp of the birds and chatter of the squirrels.  Cayden even got to shoot his bb guns safely while kids played, something he loves to do.

 

We were so blessed that some friends decided to join us on our adventure, their daughter is one of Ezzy’s closest friend. They had gone out the day before like us to scope out the camp grounds. We both were able to grab the last few slots available. Once the kids figured out the little trail between our 2 sites, we let go, HA, mainly I let go, and let the kids roam to and fro between our sites.

 

One thing we quickly learned was we had grabbed wood from the wrong pile and had wet wood. After running through some solutions, it was decided Richard would drive to my cousins’ to get some dry wood. Within a few minutes of him leaving, my said cousin showed up at our site with a truck full of wood, because he just wanted to check on us novices. Thanks to my family we were supplied with plenty of wood for our camping trip.

 

As nighttime began to fall all our heads were topped with the headlamps Richard found in the $1 bin at Safeway.

Smores were happily eaten in mass quantities around the fire. Along with a rich desert my sweet friend and her hubby decided to bring us after their date. Needless to say all healthy clean eating went out the door this weekend and I indulged in lots of yummy things.

 

Even though it became apparent that our neighbors, a group of young 20 somethings had no regard for the family with little kids next to them, we managed to squeeze a few hours of sleep in. When I say few, I mean few. They didn’t quiet down until 3:30 am and we could hear every word spoken as if they were in the tent with us. Our little early risers woke with the thrushes’ morning song and daylight and we soon had movement at our camp ground at 4:30 am.  

 

Not enough coffee could cover the exhaustion that Richard and I were feeling.  

 

We were pleasantly surprised how quiet Ezzy’s generator is. When it was ran the night before all the camp sites were full of lots of sounds. When we used it in the morning it didn’t seem to bother those around us. I think the songs Ya’el was singing was louder then the generator.

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​My sweet friend who brought us desert the night before also came and met us in the morning to go and check out the minus tide with the kids. She blessed us with some candid photos of our time together. She even went back to our site and snapped some pics while we were away.

 

Coffee, tired parents and kids being fed energy from the freedom to explore made some pretty great pictures if you ask me.

I learned on this trip my friends’ husband is the piped pier of little ones and this picture says it all. 

The kids even found a bullhead submerged in the sand too.  Along with sea stars and plenty of shells. 

 

Quesadillas were scarfed by hungry bellies and we gathered our swim gear and walked to the beach. My little man was set on taking me out in the little boat I had found at our grocery store the day before and we chatted about all the things he loved doing and couldn’t wait to do for the rest of the trip. 

Honestly this is why so few pictures were taken. I found myself caught up in conversations with my friend and her husband and we had ample times to just sit and hear each others’ hearts. One mark of deep friendships is the ability to sit together in silence, no pressure to fill the spaces. That happened that day on the beach. It blessed my introvert heart in so many ways.

 

After crisping up our skin with the welcomed sun, we headed back to the campsite and found ourselves with more visitors! My cousin and her boyfriend brought a drone to play with and also extra arms to hold little girls. 

One of Ezzy’s favorite people came to visit us too and sat with her while she drew during one of her therapy sessions.

Cayden was able to go kayaking with another cousin who came by and he ended his time securing a place in Yael’s heart too.

 

Our kids went down without a fight and their tired little bodies found sleep quickly even thought we realized we were going to experience another night of little sleep thanks our neighbors. But we did see a pretty amazing sunset!

 

Richard and I were taught cribbage by our friends who joined us for the camp out, while our tired kids all slept. Richard took a few trips to check on the kids and did find himself running quickly over to our site to calm a frantic child that was trying to get out of the tent and couldn’t find the zipper.

 

Thankfully our kids slept a little better and Richard smartly brewed a pot of coffee immediately to ensure he wasn’t met with a grumpy momma again. We knew our time had come to an end and we needed to get tired worn out bodies back to civilization. We broke down camp in record time, probably driven with the incentive of a hot shower and our own beds for the night.

 

Before we could go, our children decided to have church (they even made invites and passed them out to all campers they could find).

I will admit, I really wanted to go home and was ready. I was done being the buffet for bugs, I was in desperate need of quiet time. I did not go to church with the best mindset or heart. But when these little children who lived out what us parents have been instilling in them, I soon found tears gracing my eyes.

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​We were led in worship and communion in a little sanctuary made of skunk cabbage and moss. Rays of sunlight peaked through the trees. Sounds from the neighboring site filled the forest sanctuary. They even had a section for the sound guys to sit in. Our communion elements were made up of white sandwhich bread and purple sports drink.

 

There at campsite #6/7 we partook in Christ’ sacrifice and gave thanks for the full filled weekend he provided us.

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​Needless to say, this crazy family is already dreaming and planning our next camping adventure and can’t wait to make more memories. Thank you for believing in Cayden. Thank you for supporting him. Thank you for the camp gear that was purchased for our family. Thank you for allowing this amazing time as a family to happen.

What you see: a clean shaven, well kept man
What I see: the laundry that had to be washed, dried, folded, hung and put away. The towels that have to stay stocked. The shave cream, deodorant and other essentials that need to be bought even if he doesn’t write them down on the walmart list. The belt that I find in random places and put in an assigned place to ensure he isn’t searching the house last minute before going to work. The coffee, fresh eggs and homemade bread that is always in our home so he can have his standard breakfast. The hot lunches everyday. Dinner ready shortly after he gets home. The late evening couch dates, the unending role of being his sounding board to the dreams he has and the voice of reason to the problems he faces. 

What you see: a polite, caring, focused little man

What I see: the unending life lesson talks that take place as we work through the issues that come from building friendships. The urgent hugs when the tears are forming, just to be put at bay as he clings to me. The manual labor, time outs, restrictions, and other forms of character building actions to face temperaments and words that should have never left his head and mouth. The incessant need to torment 2 sisters every single school morning leaving me with thoughts of far away places that don’t include them, just to be shown his compassion when they are hurt or scared. The promise to never give him false hope of what he can do in the world, but also the reassurance that he can and will be able to go after BIG things because of the inner drive the Lord gave him.

What you see: a healthy vibrant normal 7 yr old girl

What I see: the mirror of all my strengths and weaknesses. The fighter, the warrior, the “don’t tell me I can’t” spirit. The hard talks, the list of why’s that are given on a daily basis when challenged to not comply with her CF maintenance plan.  The meal planning to reach her insane amount of calories needed, the therpay schedule, meds ordered.  The tears that fly out, fits thrown, glares, words that break a mom’s heart when CF is too much. The courage and bravery when asked to do things most adults can’t handle on clinic days with her team of specialists. The smile out of the corner of her mouth, dark brown eyes locked on me as if to say “mom, breathe, I am ok”. The after school talks about her dreams of leading worship in church one day, the way I should sing songs or when they should be sung at church. The cries, alone in a hot shower, far away from her, after reading her prayer journal and facing the reality of how her 7 yr old heart is dealing with her fatal disease. 

What you see: freckled face, fearless, intense, bright light 5 yr old

What I see: the constant need to be affirmed and in close contact with me…ALL the TIME. The creak of the floor, the shower turning on, the realization I am alone in the bathroom sends her soaring to get one on one time. The need to know every boundary and dos and don’ts in life. “Mom, is this bad…mom I can’t do this right…mom, this is the right way, right?”. The talks of not squeezing her baby sister so hard that always leaves the baby in tears. The talking off the ledge when hysterics come when something doesn’t go her way. The reminder of who she is in Christ when she makes everyone want to be far away from her due to her level of intensity. The bloody nose that had to be cleaned up after her sister ticked her off. Her need to pray for people on the spot many times at the most awkward time, just to be reminded that if we don’t listen we could rip away the very thing God created her to do. The gentle reminders she is seen and will be cared for when she climbs the counters or cuts her nails to short because she got tired of waiting for her turn in the hierarchy of needs being put on her parents.

What you see: a infectious soon to be 3 yr old

What I see: the need to stop what I am doing and sit on the floor and hold her after making the baby cry for the 8th time before 9:30 am. The patience needed to wait for little miss “me do it” that delays all hopes of being on time anywhere. The reminder to watch my words unless I want them repeated in ways they are not meant to be. The battle of wills when trying to convince her it’s her idea to do something. The rubbing of my head or back when I have put myself in time out after nearly loosing my top with her and her stubborn spirit. The “I lubb you mommy” when I finally get a moment with just her and I.

What you see: a gentle quiet little baby

What I see: the midnight feeding, the 2:30 am feeding, the 5 am feeding. Eyes closed, rhythmic breathing as I hold her chubby little hand in mine. The burping, rocking and gentle movements that take place to get her back in her bed. The tears to be held NOW when her siblings need me, the dinner that needs to be made, the floors that need to be scrubbed, the laundry that needs to be folded. The refusal of solids when all I want is to be able to go 4-5 hrs without needing to be a open 24/7 diner. The cries that can’t be figured out, only to learn that momma’s arms, a quiet lullaby and my beating heart soothe whatever ailment she has. The postpartum body glaring back at me and beating up my confidence, but is met with the purest sigh of relief when each meal is prepared and made from that awesome post partuem body 

To all the momma’s living everyday in the trenches. I applaud you, I want to line up a whole group of women and have you run through a tunnel of cheers and high 5s from warriors, fighters, survivors, contenders, sisters, mothers, grandmas, aunts, who know and see you. I want you to be seen. I want you to be honored. I want you to know that all the things you do everyday, every night, over and over, matter. Don’t give up hope, don’t think other moms have it all together. They are probably crying over their coffee that was ruined with a dog toy too.

To my momma friends, I see YOU, you are NOT invisible.

What I would give to hug and cheer each of you on, but let’s get real, trying to get out and do something for ourselves and match another mom’s small window of “me time” is near impossible. So let’s dream of that magical day we can sit and look back on theese days and be thankful we survived and more importantly blessed to be called MOM, a title some pray and wish for but never will experience. 

So until then, I raise my cold cup of coffee that was hot at one point, to you

Happy Mother’s Day 

A quick trip down memory lane led me to a find a little picture that brought back so many feelings. Scared, anxious, nervous, ready, surreal, a sense of peace, all could be used to describe the woman that I saw. Although I have to be honest, the feeling that I don’t want to admit is insecurity. 
6 yrs of being a slave to the scale, the daily pursuit to fit into a mold that sucked the life out of me, all vanished when those two little pink lines showed up. I watched my body ballon with 70lbs. 70 lbs more then I could handle and had begun to live in shame at the new physique that cradled precious life.

An unrealistic hope that I would not have to go a day or minute past my due date soon was squashed. Even though I watched my body grow and grow and grow I had somehow lucked out with not a SINGLE stretch mark. That was until 40 wks and 1 day gestation…the next 4 days made up for the 40 wks and 70 lbs that hadn’t seen a stretch mark.

Maybe my early morning runs with my first born brought me to those sacred feelings a first time momma experiences. Cayden and I have been training for the upcoming local 1/2 marathon. He has a goal that he is wanting to achieve and it’s all centered around Ezzy. I remember the day he told me he wanted to run it. At first my reaction was, “well, let’s maybe just train for 1/2 of the 1/2”. Hearing the defeat in his voice after his mother foolishly voiced her unbelief in his ability made me back peddle fast. I turned around and looked him in the eyes and said “if you really want to do this, it’s going to take a lot of hard work and it won’t be easy, but if you want to do it, I will train you, because I believe in you”. He settled his body back into his seat, nodded his head and returned with the most firm “ok” I had heard his little 8 yr old self say. 

For the last few wks we have gotten up at 5:30 am. We set out our running clothes and make sure that we walk as if there are land mines all over, ensuring the grumpy non morning people don’t wake up to early. We whisper, something that only the 2 of us possess can manage to do, aside from the rest of the family and quickly stumble out the door to the fresh air. There is no need to give him space, let him take a certain amount of breaths before he can think or speak. No, my son is just like me. Rising early in the mornings is special. There is a restful yet excited spirit that wakes early in the mornings. Anticipation of the day looms in the air, but the weight of the morning light or lack there of in Alaska’s spring doesn’t hold us back. There have been some very serious talks in the first 20 minutes of our mornings.

Thanks to the current psychotic weather, snowmaggedon 2017, we have been relegated to start our training indoors. The 1/2 track has become the giant that we face and even though there have been grumbles about how many laps it takes to run a mile, 12.5 to be exact, we rise and set out to reach the goal he has set before him. 

A momma with her little man comes and walks the track in the mornings. The little guy is maybe 20 months and they walk together, he loves to play chicken with us, but it has never bothered me unlike the walkers who refuse to move to the side when we run by… this momma, she was me not too long ago, yet feels like forever ago. I she her messy bun hair, sweatshirt that hides the never ending postpartum body, the tired eyes, the heavy breaths when the little guy acts up, but most of all I see her survival spirit. Something every first time mom all of a sudden realizes was within her all along even though she didn’t know it until she had to use it.

Cayden rocked my world. His birth that refuted what doctors said may never happen should have been a sign to my perfectionist heart that the road ahead was not going to be black and white, stay in the lines, or clean. My entry into motherhood was messy, and that’s a nice way of putting it.

Poor Cayden had a momma that thought she was ready. Just to find out that trying to live and be a functioning member of society, while nursing a baby every 1.5 hours 24/7 was really hard. The scariest thing was realizing I really didn’t know myself, that I didn’t know how to be a mom, even though I had a stellar example my whole life.

That survival mode I see this mom at the gym have. I realized I am still in it…
I had no idea that when I brought my first born home, 4 other little souls would show up every other year.

Just when it felt like I had found my rhythm, created a schedule that allowed me to still be relevant and acknowledge his growing needs as the oldest, a new life would show up. 

“Hold on, I need to go nurse the baby, can you get a diaper, can you find a binky, hold your sister, read her a story, no I can’t come into your class and volunteer every week like so and so’s mom, sorry I forgot…” those phrases have uttered my mouth more times then I want to admit. Quite frankly if I had to sit and tally them now, I would spiral out of control that would be fueled with guilt.

Cayden has been the trial baby, in a sense. We have learned through failure and thank God some success with him. 

Even though he came into a family that was young and immature and not really ready to be parents, he came in loved more then anything. 

We didn’t have much and made a massive move in the first few months of his life. I would soon find out what post partuem depression was after living in the constant sunshine just to be surrounded by the constant doom and gloom of Ketchikan fall. There might have been a few days where his little head got a mini shower from the tears that fell as he slept on my chest. 2 yrs later he would again witness his mom unravel as we lived at Ronald McDonald’s house. 2 years later he would find out what it would be like to get pushed aside too many times as I cared for his little sisters, 2 yrs later…2 yrs later…

Cayden has seen the worst, the best, the hidden, the easy, the hard, the stuff that could possible send him to therapy one day…getting real here friends

What I hope he remembers the most is that I loved him first.

He was the first little baby to say mamma, the first soul to love me with abandon, the first little toes to witness walking for the first time, the first preschooler, the first sleepover, the first hunting partner. His list of being the first just keeps going.

Recently on a drive home from the gym he showed me just how fast he is growing up. He asked me something I was not ready to answer. “Mom, lungs are hard to get, right?” I had a brief second to gather myself, realizing the talk was entering waters I didn’t want to wade in. A simple yes was my response. No need to muddy the waters with dirt that didn’t need to be there. “Mom, is that why Ezzy will die, because she won’t be able to get lungs?”…

Breath held, eyes locked on the road, heart beating loudly…could he hear it?

“Son, that is why we work SO hard at doing her therapies, it’s why we are careful when she is sick or other people are sick, it’s why we do all those things, because we want to keep her lungs healthy”

A stop sign came up just in time, I looked over, knowing there were no cars behind me and saw my little man rapidly blinking away the tears that were forming in his eyes.

Death the realness of it is something our family has walked through the last 2 yrs. Loosing people unexpectedly has left a mark on all of us.

Since that drive, I have seen a new tenderness in him with Ezzy. He doesn’t throw a big fit anymore like he use towhen Ezzy has to move in temporarily due to a sick little sister’s cough.  Yes, I know that I post pictures of a sweet loving supportive family, but I don’t share the huge life lessen moments, the ones that are messy, the ones that take more of me on my knees with a Jesus then letting my carnal nature lose. Cayden is all boy, testosterone oozes from him and many times I tell him to go take a lap around the block because the girls and I have reached our quota of him. He is sarcastic just like his daddy, he is super smart and uses those things against his naive little sisters more then he should. I realize it is all normal stuff, but goodness he just does me in on an almost daily basis.

Yet, when I am choosing to look at him with Christ like eyes, I can see the little man that has the world at his feet. God put an insane determination within him. Case in point, do you know any other third grade boys who willingly get up early and run five miles on an indoor track (62.5 laps)? God also put strong desire to fight for justice, something that can drive me nuts when he wants to play Law and Order in our home. But if I see him through Christ’s eyes I see a man that will go after the hard things and do them because he is motivated out of genuine love and care. I will see a man who will fight for the weak, a man who will defend those who need strength on their side. I will see a man who is willing to listen to his discernment and ask the hard questions even if it means it’s something he doesn’t want to hear.

Today William Cayden Harney is 9 yrs old. He has spent 1/2 of his at home years with us. Something super hard to swallow, yet as I get to rise and spend the early mornings with him I find excitement in his future. I don’t know what the Lord has planned for him and even though every boy dreams of a career in the military I truly believe that if he wanted to be a Marine, Army Ranger, or Navy Seal, nothing will stop him.

Happy birthday Cayden, I loved you first and you will forever hold a very special place in my heart, my one and only son.

On this day 7 yrs ago, I was staring past the calm pediatrician, looking at the dark winter sky and trying to shake all the scary thoughts running in and out of my head. My husband’s eyes were swollen and red from the tears he had shed, alone in the hospital bathroom, waiting for me to wake up. I had a lot of blood loss and kept passing out. During that time, Ezrah May Harney was being watched by concerned eyes, the call for a life flight was made. Everyone, was holding their breaths, waiting for the pediatrician who had cared for 1,000s of ketchikan kids to come and prepare this little family for news they were not ready to hear. Our newborn baby girl was very sick, tubes were stuck down her throat, wires attached to her skin, her little body was cradled by an incubator and not my arms that felt naked without my baby I didn’t know. Sleep they told me, sleep. I couldn’t imagine leaving her in the nursery, my breasts were leaking, wanting to feed a baby that could no longer eat due to fear her bowels would rupture. A big blue machine was wheeled in and the nurse helped me express milk as tears fell from my face.

The ambulance driver just sat in silence as I wept on the 5 minute ferry ride to the airport. The cord that had kept Ezrah and I connected for 9 months had been cut. She felt miles away from me. I had only held her for an hour as she nursed from my breasts within the first few minutes of her taking her first breaths, her only feeding she would have for weeks from me. I walked my tired aching body up the little plane. Tugged at my jeans that were slipping down my body from no longer holding Ezrah safely in my tummy. No new mom packs for a life flight to another state and hospital. No new mom anticipates she will be flying in the clothes she went to the hospital in, so that specialists can try and save her baby girl. No new mom thinks to bring a pair of pants to wear that will fit her drastically changed body in less then 12 hrs…

Ezzys story, something that I can tell you like it was yesterday. The color of the sky the morning we flew out, the striped shirt I wore, the bag of plain lays potato chips that was offered to me by the life flight nurse, the encouragement to sleep by the pilot, the head of surgery meeting with us infront of a big screen showing us what the tests revealed, the prognosis of a year living in the hospital, waiting for her to recover, the bathroom floor that we held each other and wept while 21 mo old Cayden slept in a pack and play that his tired body was placed in at midnight after his parents finally got checked into Ronald McDonald’s house…

Even in all the grief, terror, mental walls being built, living in a state of denial, nothing prepared us for the day we would hear Ezrah had a fatal lung disease, a disease that would tell her parents they would witness the death of their child before most ever would.  

For 7 yrs I have watched and many times held my breath when Ezrah is in my presence. I have experienced it more now that I am watching her youngest sister grow and reach milestones, it is in those moments that I realize that I struggled with reality and the doom of her limited future. Long ago, it is as if I mentally buried her, yes, I did, to protect my heart from anguish, I told myself I would never recover from.

In all the chaos of her diagnosis, Richard entered the world of social media, still a very new thing 7 yrs ago. Facebook was barely used then, crazy right? It was still so new and people were still holding onto the dinosaur MySpace.

In his searching he met a young Tlinghit woman (a rarety in the native population), in her early 20s that was living with Cystic Fibrosis, two words that were becoming part of our daily language. I remember him coming home from work, telling me he had reached out and met this woman through a support group for families with cystic fibrosis (CF). I shut him out, I couldn’t handle hearing the scary, I didn’t want to know the pain, hardship, the things that broke her, broke her family all because of those two little letters. Seeing my pain, seeing the walls go upset again, Richard retreated and never mentioned his discussion again with this young CF woman…

Fast forward to the beginning of 2016.  

A CF research magazine arrived in the mail. I will admit, sometimes I read it front to back, other times, if I am in a rough spot with the disease that has shaped and sifted our family, I will file it away for when I am in a better place. The cover immediately caught my eyes, it was of a young woman running. The name, her story, as I read it, I realized it was the very woman who had received and responded to a scared dad, trying to find hope in the hopeless.I am a very aware person of personal boundaries. They matter to me, maybe because my boundaries have been set to protect my heart, I am so proactive in making sure I don’t break others.

I searched for the young woman, found her on FB and in an act of unusual courage reached out to her and asked to “friend” her. I thought I had to write up Ezzys story, tell her about us, because why on earth would she remember a conversation she had had almost 7 yrs ago? Nope…she remembered us, she remember our girl.

One thing that sets this fatal disease apart from others is the isolation that comes with it. CF patients can never be around each other, they can’t go to camps, events, sit and play at a playground together, be hospitalized together. It’s even a risk for family members to be around a person with CF, through research, they have found the deadly bugs that attack and scar the lungs can be carried on family members. Ezzy doesn’t get to sit in a room with other kids and talk and see someone just like her. She is ushered quickly to the side, given a pager and the staff at her CF clinic stagger and assign rooms so that interaction is nearly impossible…because isolation means protection.

It is insanely lonely as a mother raising a child with this deadly disease. There are no support groups for me to go to, no sitting over coffee with another momma, because Ezzy is the only child to have this disease on our small island of 13,000 ppl. I know the feelings I have as a caregiver and I can’t imagine the things that go through my tiny little fighter.

My mom recently blessed Richard and I, with an opportunity for us to travel with just Veil. He had a presentation he had to give for his job in another city and I was to tag along to rest, relax, enjoy the hotel life of no laundry to do, food to cook, or 4 other little children to consume my day. It sounded like heaven. I was ready to just disappear and get to know my little Veil Eden and have lots of quality time with her.  

All of a sudden, I turned to Richard on the ferry ride over to the airport and told him I wanted to reach out the woman who we had reconnected with. I asked him if it would be strange, he told me to do it. I sent the message, told her we would be in her home city within a few hours. I tried giving her an out, telling her I knew it was short notice, but if she had even just an hour we would love to meet her. I put my phone on flight mode and tried to tell myself that I didn’t cross her boundaries…

The last day of our little get away I found myself restlessly sitting in the car, outside the meet place. Wondering, praying that I would hold it together.

You see, this woman, beautiful, married, a new mother, sat across me, with such a gentle calm spirit that it brought forth every fear I have faced over and over again. She just ran her first marathon, yes you read that! She ran a marathon and had a lung infection leading up to her big day she had trained and but months and months of dedication to.  This CF warrior, now 30, the age expectancy that was dropped on us after we heard the two letters that would be Ezzys everyday, she is the very image of everything I have prayed for and in my darkest refused to hope for. 

Being raised with a faith, being shown that the bible has an answer for everything, I have tried my hardest to let go, to accept the fact that it says, none of us are promised tomorrow. That just because Ezzy has been given a prognosis, doesn’t mean it is necessarily true. 

But I am a planner, I need to prepare, I don’t handle it when things deviate from my route I picked.

I had to remind myself to not stare intensely as she spoke and shared her experiences with us. I tend to be an all in person, paying attention to everything. My senses go in overdrive. But I kept trying to suck those tears back in, I fought them, I kept telling myself “pull it together Sarah, she is here to share her story, not to see that you still can’t handle Ezzys.”

Just when I felt like an idiot for not being able to reign in all the things racing through my brain and the feelings that kept overflowing, she looked at us and acknowledged how crazy it must be to meet an adult with CF, one at her age. There, that moment was when I thanked the Lord for giving me courage to ask her to meet us.

We talked, asked questions, I even recall smiling as she recalled a time in her childhood that mimicked something in Ezzys. Soon the room that felt so stuffy, with all the weights I have been carrying for almost 7 yrs, felt lighter.

This woman said something so small, she probably doesn’t remember or hold much value over it, but it has been on my heart and completely changed my perspective of being Ezzys momma.

Her momma would say to her, when she would challenge her parents in the therapies or adhering to the relentless care plan CF demands, “it’s ok, there is always tomorrow”….

“It’s ok, there is always tomorrow”…

“Tomorrow”…

Dear Ezzy,
Baby girl, I am sorry that I have grieved your tomorrows. I am sorry that I have feared your tomorrows. I am sorry that have let tomorrow be a word that I dread. After this special meeting that happened with a young strong and brave woman, I pray you will look up to her when you are overwhelmed with the loneliness. I pray that I start looking forward to, with joy, your tomorrows. I learned in that meeting how much you need a momma that can pick you up, see past what the doctors say, and tell you that you are more then CF, that your life is meant to make the tomorrows worth waking for, not to dread. 
This young woman found a man, one that wasn’t afraid of her story, that wanted to be the meat of her story. They married, to top it off they have been given a priceless gift of being parents. Ezzy, what this woman showed me is that I need to keep dreaming of your tomorrows, to not hold you back from something just because CF says it can’t be done.
Ezzy girl, you are 7 yrs old today. 7 yrs old…how quickly these years have flown by. How much you have grown in strength and understanding. You recently woke up, started your therapies on your own, nebs and all, without being told. I have witnessed you come home from school on most days, grab your homework and start your therapies on your own. Your routine, vastly different from the rest of the family and your friends is not something that takes away your joy everyday like it use to. It’s as if, in the last few months, something changed within you, a maturity has arose and you fight not because you are told to, but because you choose to fight the battle. You in your 7 yrs of wisdom have decided you won’t let CF win, you won’t let it ruin your day, even if it means you are stuck to machines, stuck to the couch when everyone else is running around. 
 
I watched you march up to our pastor in a packed room of adults and kids, he bent down to hear your little voice. You shared what was on your heart and he responded.  You know what you want and life and don’t let fear hold you back.

Ezzy,there is something very special about you. You have no idea how much I hear people tell me they love watching you grow or better yet acknowledge them. 
Your black and white, matter of a fact personality has been stretched this school year. You have found a friend that makes you embrace the silly, a friend that loves to laugh, a friend that doesn’t see the world that same way. I witnessed at your school Christmas concert how much you need this friend. As I held my breath, heard my heart pound  while I watched you dance in a packed auditorium, no planned choregraphy, I let the tears come. I let them come, because I heard the lord say ” see Sarah, she is loved, I love her so much, I am giving her the people she needs, the people who want to make Ezzys today’s and tomorrow’s full of life. You and her are not alone on this journey” You danced your little heart out and for me, that was the best unexpected gift I have received from you and there have been many on this journey of being your momma.​ (Ezzy is the one in the black dress and updohairstyle)

​Sweet Ezzy, here’s to 7 yrs of watching you grow and turn lemons into lemonade, I can’t wait for all the tomorrows you want to chase. Your dream of being a worship leader just makes my heart pause.  I pray that you will learn to worship God in the ups and downs of your life, that your heart won’t be scarred but healed by the one you made you for a high calling. 

I pray that instead of holding you back in my fears, I will push you forward towards the tomorrows. Happy birthday my miracle girl